The Inequities

Honduran Children Outside

I grew up blissfully believing that “life was fair.” I have many memories of my grandmother giving my brothers and me equal amounts of gifts, wanting everyone to have the same. It wasn’t until I was an adult, and more notably, after visiting Honduras that I really became aware of the inequities of life.

After visiting Honduras, I realized how blessed I was to be born in the United States. I don’t always feel proud, but I certainly feel blessed.

Others often question why we volunteer in Honduras, saying there’s so much need in the U.S. We certainly don’t discredit this and don’t believe it should be an either/or choice of involvement. But, there is a huge disparity. Honduras doesn’t have the “safety net” that the U.S. offers. They do no not have a medicaid system, homeless shelters or food pantries which we have. When you are admitted to a public hospital, you are responsible for everything from your own medications and blood to toilet paper. If you are accompanying a patient, don’t think you’ll be sleeping on a pull-out chair, you may have the chance to sleep on the blood stained floor.

Attending schools in Honduras is often a priviledge, not an expectation. In the U.S. we  deal with truancy, in Honduras, they are grappling for the opportunity

In Bee’s time…

It’s been a few days since I last wrote…Bee decided to spend St. Patrick’s Day in her own way…watching the doctors run to her room and having the ventilator re-inserted and a chest tube added to drain the fluid in her lungs. This wasn’t what the rest of us had in mind…perhaps she was getting me back because I didn’t have a green bow for her hair!

Bee remained on the ventilator for the next 3 days and it was removed yesterday at noon. She enjoyed the afternoon by getting out of her crib and being held and played with. Little by little, IV’s are being removed…although still enough wires to get tangled in and try to pull out!  Yesterday she was back to a popsicle and today she’s advanced to scrambled eggs and jello.

They continue to do chest xrays and actually culturing her now to see if she has some sort of infection. Hopefully, it’s simply a cold. On my way down to the gift shop to get her a balloon…she loved playing with the one for her birthday! Astrid has made a beautiful get well card and it is hanging in her room. Hopefully, we will continue on the up swing!

Bee’s newest milestone

Berenice

Baby Bee is breathing on her own. The team removed her from the ventilator about an hour ago. Actually nice to see her fiestiness reappear, and she was back to kicking and shaking a rattle. Her voice is still quite raspy, and her distinctive voice (a.k.a. high-pitched shriek) hasn’t shown itself, but it will come. Right now, she  is resting comfortably and the docs are happy with her continued progress. She’s sporting one of her signature bows and has a doll by her side. Thanks to all the wonderful staff at Tufts and to friends and family for all your support.

Baby Bee has moved to P.I.C.U.

Berenice

Am thrilled to report that Berenice’s surgery was successful and she’s moved to the P.I.C.U.! Dr. Warner was able to remove/patch her pulmonary valve and that seemed to stop the tricuspid valve from leaking. Her enlarged heart has already shown signs that it is decreasing in size, and it will continue to get smaller. They plan to keep her heavily sedated, and she will remain on a ventilator over night while her lungs become accustomed to the increased blood flow. There is much rejoicing being done both here and in Honduras! Thanks to each and every one of you for all your love and support…it is so very appreciated.

Berenice returns to Tufts Medical Center

Last Wednesday (March 14th) baby Berenice spent 7 hours in the cath lab. Unfortunately, the doctors were unable to complete the catheterization. Yesterday, Berenice was re-admitted to the hospital and this morning she is undergoing open heart surgery to repair her pulmonary and tricuspid valves. It has been nearly two hours since she entered the OR,  and we have many more hours to wait. Thankfully, Berenice’s aunt Digna and her cousin Gabriel have arrived from Pennsylvania and are waiting with me. We just spoke with Berenice’s mother, who is back home in La Lima waiting for news. We are comforted knowing there are people from many faiths and cultures, praying here and in Honduras…Baby B is surrounded by much love!

The Waiting Is Almost Over

Berenice
It’s been six months since we first heard about Berenice Elizabeth and her need for cardiac surgery. I have worked with Lori Cordova, RN on other medical cases, and she wrote asking for help for this infant she had met during one of her cardiac brigades in San Pedro Sula. A week from today, Lori will arrive with nine month old Berenice. We are anxiously awaiting their arrival and finally meeting each other in person.

We are thankful to Lori who will be flying from her home in Virginia to Honduras on Thursday and helping Berenice’s family through the tearful goodbye; reassuring them that she will be well cared for and return in two months, with a repaired heart. It’s impossible to comprehend what her parents will be going through emotionally, and we’re grateful for their faith in us…strangers, living in another country. Once again, we realize how fortunate we are to be living in Boston, a medical mecca, and the generosity we receive from Ken Warner, MD and the folks at Tufts Medical Center, as well as the financial support from the Ray Tye Medical Aid Foundation. Without their help, this wouldn’t be possible.

Searching for Hope…

Ana

Yesterday afternoon, I was having lunch with friends in Concord when I received a call from our friend and Honduran coordinator, Ana Hernandez. A family from Tegucigalpa had arrived at her house ( 1 1/2 hours away) looking for help from “the Americans” (us) for their 11 year old son. I asked how they knew about us, and her reply was, “they had talked with a friend of a relative of a child you helped who had a heart problem.”

This extremely impoverished family had gathered together enough money to travel to Ana’s in search of hope for their child. And now Ana was on the phone with me over 2,000 miles away, trying to explain the child’s medical condition. This young boy had been to the doctor in Tegucigalpa and was told he had skin cancer, and now he was wearing bandages over his eyes and had lost his sight.

Unfortunately, doctors give very minimal information to patients and parents, and often times it is not accurate. Therefore, many Hondurans have very little trust in the medical profession and believe that American doctors will offer better care. Thankfully, over the years we have developed some very trustworthy relationships with Honduran doctors. They are extremely accessible to us (giving their cell phone numbers) and will see our patients promptly. Peggy Kipps, executive director of The Ruth Paz Foundation will refer our patients to the American brigades she coordinates.

Although we cannot always offer a cure for the patients, we are able to give the parents accurate medical information in a compassionate manner. We also offer other resources (ie. physical therapy, medications, medical aids) which can assist the patient and their families with living with a particular illness or injury.

Last evening Tom (a pediatrician) talked with a woman assisting this child in need. She described his condition in greater detail and Tom asked for photos to be sent ASAP. We will be sending this child to San Pedro Sula to be seen by an eye specialist who treated one of our other children born with congenital glaucoma (and now has restored vision).

Once again we are reminded of Ana’s critical role in our work in Honduras. Without her, none of this would be happening. Ana offers her bilingual skills, endless hours of commitment to “her people”, is incredibly resourceful, has trusted relationships in every corner from her neighbors, to political officials to the medical community. She is very intelligent about everything from how the water system works to explaining to us local customs, traditions and beliefs. She truly is the Honduran heart and soul of Esperanza, and we are grateful for her presence in our lives.

Astrid’s recovery continues…

Astrid at Shriners

In January, 2007, four year old Astrid Ordonez was operated on at Shriners Hospital for Children (Springfield, MA) for a “tethered cord.” Astrid was born with this neurological disorder, which is caused by tissue attachment that limits the movement of the spinal cord.

Astrid has returned for treatment of her left “cavus” foot, a condition of her neurological disorder, which results in a very high arch. The doctors at Shriners have now completed two sureries on her foot. The first one was a tendon release, and the second one required them to insert a wedge of bone into a cut in one of Astrid’s bones, in the middle of her foot.

Astrid is now wearing a full-length cast for six weeks. She will then be x-rayed and it will be determined whether she will require additional casting or if she will be fitted for an AFO(ankle-foot orthosis), a plastic brace which will be inserted into her shoe.

We are grateful Astrid has been given this opportunity for treatment because without it, the disorder is progressive causing sensory and motor problems, as well as, loss of bowel and bladder control.

On April 13th, Astrid will return home to her family in Flores, Honduras.

“It takes a village…”

Verinice

It certainly does “take a village to raise a child”, and in this situation, to save a child’s life. Lori Cordova, RN and coordinator of the Friends of Barnabas Foundation’s cardiac medial brigades in Honduras, met Berenice Elizabeth last September. At that time, the cardiologists realized she had pulmonary stenosis and would need open heart surgery. Although they were able to operate on many other children, it was determined she would need to travel to the states for this operation.

Lori was introduced to me by Peggy Kipps, executive director of the Ruth Paz Foundation in San Pedro Sula. Peggy and I have known each other for several years and have worked together with many patients in Honduras, and also many who have traveled to Boston for medical treatment.

Esperanza has brought two other cardiac patients to Boston for treatment, so once again I turned to our trusted friends at Tufts Medical Center and The Ray Tye Medical Aid Foundation. Working with Deb Bunk,P.A. and Ken Warner, MD at Tufts, they reviewed Berenice’s medical reports and determined this was a child they could help. Dr. Warner has generously offered to donate his services free of charge.

The application for RTMAF was completed, which includes information regarding the patient and a cost estimate from Tufts. Terri Carlson informed us that Vernice’s case has been accepted! We are now in the process of obtaining Berenice’s medical visa which requires letters from Tufts, RTMAF, Tom and Emily Collins (temporary legal guardians/host family), as well as a letter from a Honduran doctor stating the operation couldn’t be done within country, a letter from the Ruth Paz Foundation (well known with the U.S. Embassy), legal authorization from Berenice’s parents allowing Lori Cordova to transport the baby and for the Collins’ to have (temorary) custody. The family will also need a notorized letter giving the Collins’ the ability to authorize medical treatment.

We are anxiously awaiting 8 month old Berenice’s arrival at the end of February. Our gratitude to each and everyone who is offering this child the gift of life.

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