Esperanza’s Cardiac Patients Headed For Care

Jose

Esperanza would like to express their appreciation to Lori Cordova, RN and the entire team (48 volunteers) of The Friends of Barnabas Foundation who are currently screening/treating patients in San Pedro Sula, Honduras this week. Two of our ongoing patients, and their parents have left their homes in Flores and Comayagua and are scheduled to be seen by this cardiac team. Five year old Adriana will receive a heart catheterization in the next couple of days. The team will also perform an echo cardiogram on one year old Jose (pictured above) who was previously seen by FOBF,  and it was determined that he would need to travel to the United States to receive a pacemaker. Once we receive the report, we will begin the process of contacting a previous benefactor and coordinating with the doctors and hospital who are able to provide his care. Our best wishes to this extraordinary group and all their patients who are receiving this essential medical intervention.

Why We Do What We Do

People often ask why we keep going back to Honduras, especially with how dangerous it has become. This letter from Iris Maria is one of the many examples of how rewarding our work can be. Only part of Emily getting to hear the letter for the first time was caught on video. However,  Laura Sierra who is reading the letter, was nice enough to translate the whole thing which you can read below.



This is for someone very special who has stayed recorded in my mind and in my heart and a person that I will never forget until the day that I depart this earth.

Hello Emily,

You know, I want you to know that there is someone who loves you very much. In my heart, there is something very special for you. You are an angel sent from God into my life. I will never forget that date… Tom especially, November 25th, 2008 when we met. Thank the lord our creator from the sky, that today I can run and walk. I’ve suffered, I have cried, I have been rejected but today I can say that there is hope. And this for me is a triumph. The same for you as well. I wish with all my heart that God keep you and your family safe in your travels. And that you guys continue to be prosperous in all that you do. God almighty on this day I ask that you give Emily and her family strength and that everyday you be her helper and illuminate her path. Bless their hands and their feet because they bring blessings to many. Thank you God because that is the way it will be. Amen. I want to say that I don’t have any money to repay you but I do have something that is very secure, and that is my heart. Full of sweetness. Now I ask that you never forget me, where ever you go please. Keep me in your thoughts and in your heart. That will make me stronger and it will show me that you guys will never be ashamed of me. Some day you will see that I will triumph.

Thank you Emily.
Iris maria Mendoza
Page 1 of Iris' Letter
Page 2 of Iris' Letter
Page 3 of Iris' Letter

The Vast Range of Emotions

Brayan post surgery

The longer our stay in Honduras the more I experience the “highs” and “lows”…yesterday, we were mourning the loss of little Nelly and today we are celebrating the successful surgery on Brayan. Two weeks ago, Tom was introduced to this 10 year old who had an undescended testicle and right inguinal hernia. He discussed the case with a prominent surgeon in San Pedro Sula who expressed his concern that ideally, this surgery would have been done by the time he was two years old. Without surgery, there could be significant consequences including cancer.

Originally, we thought we would coordinate a trip to San Pedro Sula for Brayan’s operation. Fortunately, a dentist from Florida (Dave Girlinghouse) who was working in Flores, referred this case to his colleagues working at St. Benedict Joseph Medical Center, in Comayagua. A U.S. surgeon who is part of the Light of the World Charity successfully operated on Brayan.

Tom and I drove Brayan and his mother to the hospital and settled them in, reassuring them we would be back later in the day to see how the surgery had gone. We spoke with the medical staff, and were introduced to “Brother T”, a Franciscan Friar who is part of the organization (along with Light of the World) which run the hospital.

After picking up “our kids” at the bilingual school, we stopped by the hospital where we found a relieved mom and her son anxiously wanting to return home. We talked with the medical folks and they said they could spend the night, which we encouraged mom to do, but she was insistent they return home where two of her other children would be waiting. Since Brayan had been given “the o.k.” from the doctors, we agreed to take them and told mom we would meet them in front of the hospital.

To pass the time, we entertained our little students by buying ice cream. We were so surprised to look down and see Brayan and mom appear so quickly, and immediately noticed he still had an iv in his hand! Tom and I ushered them back inside, tracked down a nurse, and proceeded with the discharge process. They were given written instructions and pain medication, and then I remembered…mom does not know how to read, and asked the nurse to explain it orally.

Once again, we were reminded of the limitations when someone is illiterate, and the consequences of not having the opportunity of an education. Gingerly, we drove everyone back home to Flores. Tom carried little Brayan over a hand made bridge, into his one room home which had a sheet hanging, dividing the family’s bedroom from the living area. It’s so humbling seeing how people live with such little. We clarified instructions for pain management and reassured them we would return the following day for a “house call.”

As we returned home, I thought of “Brother T’s” gracious compliment given to us earlier in the day…”you two sound like good samaritans” …no words could be more motivating.

Our Heartfelt Sympathy to Nelly’s family

For the past several months, Esperanza has been working along with The Ruth Paz Foundation and others in advocating for two year old Nelly who had a huge tumor in her stomach. She was finally accepted for surgery in Virginia and traveled there with her mother. Today she underwent surgery and her little body began to fail….after heroic efforts medical personnel stabilized her and she was sent to PICU.

Sadly, Nelly passed away at 2:00 p.m. Our thoughts are with her heartbroken family. Rest in peace, baby Nelly.

Update on Ostin

Ana and Ostin

This afternoon I received a text message from Peggy Kipps (Ruth Paz Foundation) that the long awaited drug (OK-432) has safely arrived from Japan. I was filled with both excitement and relief, and immediately called Ana (Hernandez) to share the news. Tom, Ana and I had been discussing this case last night because Ostin’s mother, Carla, had called to say Ostin was having more difficulty breathing. Tom was concerned that his fear Ostin would suffocate, was becoming a reality.

Ana, her sister, and a doctor from Flores went to Ostin’s house to share the news that help was on its way. The extended family gathered round, rejoicing in praise, for answered prayers.

Peggy is now in the process of coordinating with Dr. Lopez and the hospital administration for Ostin’s arrival. It is expected that he will be initially hospitalized for 4-5 days. His family anxiously awaits word for when they need to head to San Pedro Sula…and we will be there every step of the way. We are filled with gratitude that this little baby will have a chance at life.

Bien viaje, Jose!

Ricky, Jose, and Laura

Bright and early this morning, little Jose boarded an American Airline flight to return to his home in Honduras. He was accompanied by Airline Ambassador, Ina Melen who volunteers her time escorting children traveling alone.

Jose had been hospitalized at Shriners Hospital in Boston after suffering burns from a container of hot molasses. Once again, Shriners transformed this little boy’s life in a matter of weeks. The first time we visited Jose, he was behind plastic on the acute care unit. Yesterday, we joined his going away celebration and delighted in watching Jose, full of giggles, running around the physical therapy room.

Recently, Jose has been living with the Sierra family in Boston. When children are ready for outpatient visits to the clinic and don’t have a place to stay locally, the Sierra family has offered their home. Second to receiving state-of-the-art medical care, the experience of living with a loving family is invaluable. Children have the opportunity to develop physically when they are not in the confines of a hospital setting. They also benefit emotionally by being embraced by people who care. Host families have the opportunity to share a bit of their cultures, as well as, offering new experiences that Honduran children never would have had. Often times, host families continue to be an integral part of the children’s lives, and keep the relationships strong by phone calls and visits. Certainly, the patient isn’t the only one who benefits, host families often comment that it is one of the most meaningful experiences in their lives.

Not everyone has the availability to be a host family but you can still be actively involved by visiting children who are hospitalized locally. Esperanza has an ongoing need of large size suitcases, duffle bags and small carry-on suitcases for the children traveling home. Other appreciated items include: new underwear, gently worn clothing, small toys, Spanish books and MP3 players.

Everyone has the chance to bring a smile to a child…and I guarantee it will do the same for you!

Waiting For Hope

Ostin

Yesterday I received  fantastic news from Mrs. Peggy Kipps of The Ruth Paz Foundation that the first step for obtaining life saving medicine for baby Ostin has been accomplished! Peggy gave the credit to her co-worker, Paola, who has been working tirelessly for the past several weeks with the foundation’s lawyers and goverment officials.

Ostin was born with a congenital malformation called a “lympangioma.” At birth it was only thumb size, but it grew at an alarming rate and doctors were concerned he would suffocate. Surgery was deemed too risky and the alternative treatment is to inject the area with a drug called “OK-432.” Unfortunately, it is not FDA approved in the U.S. and only available in Japan, South Korea and Taiwan.

The Honduran government has now agreed to allow the medication to be imported into their country, and the necessary permit will be provided to the drug company. This drug is very temperature sensitive and requires specific shipping requirements, and we anxiously await its safe arrival.

Thankfully, Ostin continues to hold his own and awaits at home with his worried family. Please hold Ostin in your thoughts and join us in waiting for hope.

Searching For Help

Earlier this week, I received the medical information for Nelly Fernandez, from Mrs. Peggy Kipps, Executive Director of The Ruth Paz Foundation in San Pedro Sula, Honduras. Twenty-two month old Nelly suffers from “Fibromatosis Infantile” and is in URGENT need of help to remove the large tumor in her abdomen. And so the process begins of finding an interested doctor and hospital who will be able to provide medical care at a reduced amount, and an interested party in providing the financial support. Here’s hoping for a successful outcome.

Please keep little Nelly in your thoughts.

Berenice’s Check-up

Berenice

The Friends of Barnabas Foundation’s cardiac team is currently working at Cemesa Hospital in San Pedro Sula. A year ago they were first introduced to Berenice Miranda Garcia and tried to complete a heart catheterization. Unfortunately, the stenosis was too tight and it was unsuccessful. The team determined she would need to travel to the United States for life saving cardiac surgery.

Lori Cordova, R.N. contacted us and soon began the process of getting Berenice to Boston. We gratefully accepted the financial support from the Ray Tye Medical Aid Foundation and were once again placed in the wonderful care of the medical staff at Tufts Medical Center. Berenice’s heart was successfully repaired by Ken Warner, M.D.

Berenice, now 18 months, received encouraging news from F.O.B.F.’s team. Her heart is in stable condition and she is developing well. Berenice will continue to visit her cardiologist in San Pedro Sula and one day will require a valve replacement. Our thanks to all the individuals and organizations that have been a part of Berenice’s journey to health.

Miracle Child

Martha Christina and her Mom

I’ll never forget first learning about Martha Cristina and her grim diagnosis of kidney cancer. This precious 3 1/2 year old, and her parents, approached our friend, Ana Hernandez, with heart breaking news and a plea for our financial assistance.

We weren’t overly optimistic when we heard the news, but if there was any chance of saving Martha Cristina, supporting her with money was the least we could do. Our church, Pilgrim Congregational UCC (Lexington, MA) soon began praying for her on a regular basis.

For the next 66 weeks Martha Cristina endured chemotherapy treatments. This was immediately followed by 24 weeks of radiation therapy. Certainly this took its tole on the entire family…when cancer strikes one member of the family, it affects all. Martha Cristina’s mom became her constant companion, accompanying her on the bus to travel hours for her treatment. Her dad continued to provide for his family, having to travel hours himself, where he could find employment. Family members stepped in to care for Martha Cristina’s brothers.

I am elated to say that Martha Christina has been in remission for the past year and a half. Witnessing this child’s recovery has truly given me reason to believe that miracles do happen. We continue to visit with Martha Cristina and her family, and are thrilled to see her back in school and enjoying her childhood. She will always remain one of my inspirations.

Martha Christina in remission