Update on Ostin

Ana and Ostin

This afternoon I received a text message from Peggy Kipps (Ruth Paz Foundation) that the long awaited drug (OK-432) has safely arrived from Japan. I was filled with both excitement and relief, and immediately called Ana (Hernandez) to share the news. Tom, Ana and I had been discussing this case last night because Ostin’s mother, Carla, had called to say Ostin was having more difficulty breathing. Tom was concerned that his fear Ostin would suffocate, was becoming a reality.

Ana, her sister, and a doctor from Flores went to Ostin’s house to share the news that help was on its way. The extended family gathered round, rejoicing in praise, for answered prayers.

Peggy is now in the process of coordinating with Dr. Lopez and the hospital administration for Ostin’s arrival. It is expected that he will be initially hospitalized for 4-5 days. His family anxiously awaits word for when they need to head to San Pedro Sula…and we will be there every step of the way. We are filled with gratitude that this little baby will have a chance at life.

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