Our Heartfelt Sympathy to Nelly’s family

For the past several months, Esperanza has been working along with The Ruth Paz Foundation and others in advocating for two year old Nelly who had a huge tumor in her stomach. She was finally accepted for surgery in Virginia and traveled there with her mother. Today she underwent surgery and her little body began to fail….after heroic efforts medical personnel stabilized her and she was sent to PICU.

Sadly, Nelly passed away at 2:00 p.m. Our thoughts are with her heartbroken family. Rest in peace, baby Nelly.

In Bee’s time…

It’s been a few days since I last wrote…Bee decided to spend St. Patrick’s Day in her own way…watching the doctors run to her room and having the ventilator re-inserted and a chest tube added to drain the fluid in her lungs. This wasn’t what the rest of us had in mind…perhaps she was getting me back because I didn’t have a green bow for her hair!

Bee remained on the ventilator for the next 3 days and it was removed yesterday at noon. She enjoyed the afternoon by getting out of her crib and being held and played with. Little by little, IV’s are being removed…although still enough wires to get tangled in and try to pull out!  Yesterday she was back to a popsicle and today she’s advanced to scrambled eggs and jello.

They continue to do chest xrays and actually culturing her now to see if she has some sort of infection. Hopefully, it’s simply a cold. On my way down to the gift shop to get her a balloon…she loved playing with the one for her birthday! Astrid has made a beautiful get well card and it is hanging in her room. Hopefully, we will continue on the up swing!

Baby Bee has moved to P.I.C.U.

Berenice

Am thrilled to report that Berenice’s surgery was successful and she’s moved to the P.I.C.U.! Dr. Warner was able to remove/patch her pulmonary valve and that seemed to stop the tricuspid valve from leaking. Her enlarged heart has already shown signs that it is decreasing in size, and it will continue to get smaller. They plan to keep her heavily sedated, and she will remain on a ventilator over night while her lungs become accustomed to the increased blood flow. There is much rejoicing being done both here and in Honduras! Thanks to each and every one of you for all your love and support…it is so very appreciated.