Our Heartfelt Sympathy to Nelly’s family

For the past several months, Esperanza has been working along with The Ruth Paz Foundation and others in advocating for two year old Nelly who had a huge tumor in her stomach. She was finally accepted for surgery in Virginia and traveled there with her mother. Today she underwent surgery and her little body began to fail….after heroic efforts medical personnel stabilized her and she was sent to PICU.

Sadly, Nelly passed away at 2:00 p.m. Our thoughts are with her heartbroken family. Rest in peace, baby Nelly.

Pictures from Feb 2012 Trip to Honduras

Pictures of Feb 2012 Trip to HondurasCheck out the pictures from Esperanza – Hope For The Children, Inc.’s trip to Honduras! Click Here

Waiting For Hope

Ostin

Yesterday I received  fantastic news from Mrs. Peggy Kipps of The Ruth Paz Foundation that the first step for obtaining life saving medicine for baby Ostin has been accomplished! Peggy gave the credit to her co-worker, Paola, who has been working tirelessly for the past several weeks with the foundation’s lawyers and goverment officials.

Ostin was born with a congenital malformation called a “lympangioma.” At birth it was only thumb size, but it grew at an alarming rate and doctors were concerned he would suffocate. Surgery was deemed too risky and the alternative treatment is to inject the area with a drug called “OK-432.” Unfortunately, it is not FDA approved in the U.S. and only available in Japan, South Korea and Taiwan.

The Honduran government has now agreed to allow the medication to be imported into their country, and the necessary permit will be provided to the drug company. This drug is very temperature sensitive and requires specific shipping requirements, and we anxiously await its safe arrival.

Thankfully, Ostin continues to hold his own and awaits at home with his worried family. Please hold Ostin in your thoughts and join us in waiting for hope.

Updates from Emily and Tom in Flores

Emily & Tom

I spoke with Emily and Tom last night, and got to hear how extremely busy they have been since going down to Honduras. Noel, Stefany, Astrid, Chippy, and Daniella have all spent a few nights sleeping over, and Emily and Tom are getting to experience first hand many of the challenges Honduran kids and their parents face when it comes to school work. For example, Noel had a homework assignment where he had to cut out an image that was an example of “strength.” How do you do this when you don’t have a magazine or newspaper to use? Also, they were amazed at the amount of homework each child is expected to do even in 1st and 2nd grade.

As happens with every trip to Honduras, Emily and Tom were sought out by someone looking for medical help. This time it was a mother and her son with heart conditions, who also happened to be relatives of Noel. In order to better understand what they were looking for and to get past the language barrier, Noel translated back and forth for Emily. Noel’s grandmother was brought to tears by how proud and amazed she was seeing him in action.

Emily and Tom have also got to see friends they have met over the years including Gloria, Blanca, and German. As I get more updates I’ll continue to share what they have been up to.

This post was written by Rick Lania

An Empty Nest

Bobby and Noel

We have just returned from North Carolina, after sending our youngest child off to college for the first time. Everyone keeps asking, “how do you feel?”, “what are you going to do now?” At the moment, I am “at peace”…Bobby is content, and therefore I am, as well. It is reassuring knowing he is in a great environment, surrounded by many friends and that I will see him in a month.

It has been a big week… Noel returning to Honduras, Bobby leaving for North Carolina and Tony headed to Vermont. This is the time in your life you speculate about far into the future, and it is here. I am so thankful for having the opportunity to have been home full time with my three sons. I will certainly miss them (and all their friends) hanging out at our house and watching their sporting events and other activities. But, I also think we won’t be “child free” for too long…just 2 days after sending Noel home to Honduras I received a call from Shriners Hospital asking if we could host a 7 year old girl.

For now, we’ll take a quiet respite from “Sponge Bob Square Pants” and playing games, and spend some time rejuvenating…however, I know the longing will be back to have another child enter our lives, and our hearts…our home will not be empty too long.

The Anticipation of Separation

Noel Cooking

In five days, Noel will be returning to his family in Honduras after spending nine weeks with our family. I am trying to “stay in the moment” and enjoy each day, but saying “goodbye”  does linger in the back of my mind. We have been through this countless times, having fostered many children in the past several years, but having Noel leave is always more difficult for me. This little boy captured my heart over five years ago when his mom first introduced us and explained his need for a life saving operation. Since then, he’s traveled here more times than any other patient and spent extended periods with our family…we’ve shared his hospital experiences, holidays and regular day happenings.

I love children of all ages, and there’s a certain beauty in meeting them at a young age and watching their development. We met Noel when he was four years old, and he was absolutely adorable. He had big brown eyes, and a smile that just radiated. We loved watching him play…one day turning a cardboard box into his own toy, and another day teaching us the art of marbles.

In the past two months, my husband and I have spent nearly every evening hanging out with Noel. Now that he is almost ten years old and fluent in Engligh, he enjoys sharing stories about his home life and community. I really look forward to his stories each night and learning more about the people and country we have come to love. Although we have a home in Honduras and many friends there, we are limited in communicating with them because of the language barrier. Noel, and the other children attending bilingual school, are often our “key” to this other culture.

This summer we have learned about the different animals eaten in Honduras including squirrel, snake, and rats. We have learned about various home remedies…everything from curing illnesses to preventing perspiration. Noel has taught us how his family lives with the most basic supplies and how they improvise when they don’t have a certain tool that we would use. We have a greater understanding of the daily struggles his family (and most others) face each and every day, and a deeper sense of admiration of their survival instincts.

I am grateful Noel is looking forward to returning home to a family who loves him, and is willing to share their son with our family. It is also helpful knowing that we will be seeing him in two months, when we return to the same village as Noel’s, for a month long visit. We will have the opportunity to share some of the experiences Noel has told us about, and for that, we are grateful. Be safe, my friend.

Success Stories

Previously in our “Success Stories” section we focused on the Honduran patients who have received treatment in the United States. However, that is really only a portion of the work Esperanza does. Whenever possible we try to find treatment for the patients within their home country, allowing them to stay with their family. To learn more about these children who have received treatment within Honduras, check out our Success Stories page. Over the next few weeks we will continue to add more to this section, so be sure keep an eye out!

Update on Berenice

Berenice in Honduras

Berenice will be 15 months old on June 10th. She returned to Honduras nearly two months ago (following open heart surgery), and is growing well both physically and developmentally. Berenice is now walking and so much more active with her improved heart. After returning home, she was hospitalized with dengue fever, but thankfully has recovered. Looking forward to seeing “Baby Bee” in 7 days!

The Honduran Pace Of Life

People at a clinic waiting

“Honduran time.” Anyone who has traveled to, or lives in Honduras, knows what I am talking about. This is something I embrace and struggle with every time I’m there. On the one hand, it can drive me crazy standing on the side of the road, waiting for a bus. There isn’t a real schedule, it “comes when it comes.” We may be headed into the city with a list of items we hope to accomplish. Inevitably, we won’t get it all done. It may be that the internet is down, the lawyer is out of legal paper, or someone is on strike. It can be terribly frustrating…

Thankfully, these feelings are contrasted by the pleasures of slowing down. I never experience the stress in my neck, and spend much more time “being” rather than “doing”. Often times the heat forces you to slow down and take more time for leisure. We certainly spend more time visiting with neighbors and friends…in the end, the pace is a “gift.”