Ostin’s first day in The Big Apple

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Ostin’s day began with the continental breakfast buffet. He was quite fascinated by the containers of cereal, pressing the button for juice, and spreading packets of butter everywhere! I don’t think he ate much but he found the experience quite entertaining. After things got a bit out of control, his mom took him back to the room where it was easier to manage him in a confined environment. We waited until the stores opened, checked out of the hotel and were on our way in search of sneakers for Ostin. It was a quick decision for him…the Cars far outweighed the Ninja Turtle ones.

We were then on our way to Lenox Hospital to meet the doctors. Thankfully, I have experience driving in Boston but NYC is more challenging with many roads under construction, snow piles, and using blinkers rarely happens.Tom joined Karla and Ostin’s first meeting with the doctors while I spent time finding a place to park. By the time I entered the hospital, the introduction and examination were finished and the doctors were back in the O.R.

Next stop, the Ronald McDonald House where Karla and Ostin were spending the night. The staff was incredibly kind but it was overwhelming for Karla as we toured the many floors beginning with their private room and bath. She was handed a “key” on a lanyard and showed that you just needed to wave it in front of the key pad and the door would unlock…magic! We then saw the dining room and kitchen facilities where each family is given their own cabinet for food, and bin in the fridge. A buffet dinner is served at 6:30, but I quickly thought how is Karla going to know the time since there’s no clock in her room and she couldn’t read my analog watch? They reassured me they would ask someone to stop by their room, and escort them. I wasn’t sure Karla would be comfortable leaving her room so I went to the grocery store while they spent time in the play room.

I quickly grabbed a container of watermelon, a bag of chips and salsa, a roasted chicken and a carton of milk…dinner was done. Back to the Ronald McDonald House to settle Karla and Ostin in their room. Everyone exhausted from “Day #1.”

Welcoming Ostin and Karla

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Ostin and Karla arrived safely to New York City. Although they’re both mobile, we had requested a wheelchair so that someone could help navigate them through immigration and customs in Miami. A couple who happened to meet them in Honduras, escorted them to meet us and handed me a small bag, smiling as she said, “this is all they have.” It didn’t surprise me at all, nor did seeing Ostin in sandals about to face the freezing cold. Part of me admires the simplicity, and how much I over pack every time I travel. But I also know the reality that Ostin does not have sneakers or other footwear, things we often take for granted.

As we headed to the exit, we handed them winter coats, but they didn’t seem too interested. Once we opened the door to the parking garage, the look of shock on Karla’s face was priceless. “Mucho frio” (very cold) as her eyes widened and she gasped in the cold air! She quickly grabbed the jackets and wrapped Ostin in his new quilt. As we opened up the car door, the next cultural adjustment to hit them…a car seat! We quickly learned Ostin is no fan of these and his piercing screams remind us.

Fortunately, it was a short ride to our hotel. I had reserved one room because I didn’t want them to feel afraid and alone, but I did wonder if this was a wise choice as we tried to settle in for the night. The night actually went better than I expected, and before I knew it I woke up hearing Ostin saying, “que es eso?, que es eso?” (what is that, what is that) as he stared out the window. A whole new world before his eyes as he stared at the street in New York City filled with cars, and buses and construction trucks (his favorite). He’d only been in the city for eight hours and was overly stimulated by the sights, sounds, and temperatures. The adventure had begun.

Anticipating Ostin’s Arrival

Pilgrim Church

For the past 14 years, Pilgrim Congregational Church, U.C.C. (Lexington, MA) has been involved with  our mission work in Honduras. Our minister, Rev. Loren Lorincz, and many members from our congregation have volunteered their efforts in our  “adopted” community of Flores. Countless members of Pilgrim have contributed their time by raising funds for projects, donating school supplies and clothing, offering their hospitality to visiting patients and so much more.

This past Sunday, we were presented with a hand made quilt created with welcoming messages from the church community. I can’t think of a more heart warming, comforting gift to offer Ostin upon his arrival, and something to snuggle with  during his many operations and recoveries.

Due to all the snowstorms, Ostin and his mom’s flights have been delayed two days. Cancelled flights are a real inconvenience for us, but it doesn’t compare to what it entails on the Honduran end. Ostin and his family live in the mountains and it is a challenge to reach their house because of the incredibly rough terrain. It’s a very time consuming endeavor for them to travel from their home to the airport in Tegucigalpa. This entails their family of four to travel on a single motorcycle, a bus and a taxi…any/all of which can break down at any given moment. Then they must face all the uncertainties and challenges of taking their first flight, which happens to be internationally. Not only is it juggling your tickets, passports/visas, going through security and finding your gate. It is making sure you have enough money to pay the taxes on the tickets, having the documentation for immigration, and paying the exit fees.

Karla is 20 years old, and tomorrow will say goodbye to her husband, older son and extended family. She leaves the familiarity and comforts of home to travel to the United States seeking more medical treatment for Ostin. We so admire her faith, resiliency, and deep sense of gratitude. We’re anxiously awaiting Ostin and Karla’s arrival and their reaction to seeing huge amounts of snow and the bright lights of NYC! Wednesday, we will meet with Ostin’s doctors and look forward to learning more about his operation on Thursday and what’s expected to follow…we’ve all been waiting for this day for a long time.

One little boy…one BIG hope for medical care.

Ostin

In November 2011 we were introduced to a 40 day old baby, named “Ostin.” His family knew we assisted with medical cases in Honduras and were desperately pleading for our involvement. Ostin was born with a malformation affecting his face and neck which was so swollen we feared he would suffocate to death if he didn’t receive immediate attention. Fortunately, we have built a close relationship with Peggy Kipps of the Ruth Paz Foundation in San Pedro Sula and she often guides us to trusted physicians. Soon, Ostin was on his way to San Pedro Sula for a physical examination and ultrasound. At that time it was determined he had a lymphangioma  and after consulting with physicians in Boston, the recommended treatment was injections of a drug called “OK-432” which is made in Japan. The Ruth Paz Foundation assisted us in getting this drug shipped to Honduras in January 2012.

At first we were quite optimistic, after a few injections the swelling was reduced by 60%. But then we came to a standstill. The doctors in Honduras changed their diagnosis and began treating Ostin for a hemangioma by using a drug called vincristine. Unfortunately, Ostin did not show any further improvement and the physicians had met their limits and recommended he travel to the United States for medical treatment.

For the past two years we have been presenting Ostin’s case to numerous physicians and hospitals. It’s rather time consuming and requires much persistence,while walking the fine line of “keeping Ostin in the forefront of their minds, and trying not to aggravate them with frequent inquiries.” It’s a challenge emotionally…our hopes rise so high when we have expert physicians interested in helping, who then have to refer us to an array of other departments for review and approval, and then waiting many more months until finally be told the case is not accepted due to lack of funding. Frustrating for us, devastating for our patient’s family.

And then one day in August 2014, we received a call from the Ray Tye Medical Aid Foundation that they had found two physicians willing to operate and the foundation would cover the finances. EXHILARATION! We are in deep gratitude to everyone who is involved with finding treatment for Ostin including: Pilgrim Congregational Church, The Ruth Paz Foundation, The Ray Tye Medical Aid Foundation,  North Shore-LIJ Health System, and all the doctors and staff who have been and will be involved in his care.

Thank you for offering Ostin a brighter future. We look forward to continuing this journey along side him.

Privileged

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This morning I was once again reminded of how privileged I am. We arrived at Logan airport at 4:00 a.m. to send two of our patients (a.k.a. family members) back to Honduras. After waiting in a lengthy line, which included a long wait for people who had over packed their bags and spent 20 minutes shifting items (to avoid the over charge), we arrived at the counter. Once we began checking the children in, the agent told us there would be an additional charge of $150. Although I explained that I had been told at the time of booking of the set rate, she called her supervisor and told us she was following protocol, and we would be charged. I found myself really aggravated but also relieved, knowing I could pull out a credit card and pay.

This isn’t the case for our families in Honduras. When faced with an unexpected expense, they do not have the resources to act immediately. It takes people much more time and rely on many more resources when an emergency arrives. They do not carry credit cards, debit cards or have access to ATM’s. Often times they are caught without their identification cards and therefore are “nameless.” They may be able to “work out the situation”, but more often than not, they can’t in the moment, and will have to return at a later time through much more tribulation. I’m not sure if they experience the same frustration that I do, or if they are more accepting that “it’s just life” as they know it, and nothing comes easily.

Some how, there was a “change of heart” with our ticket agent and the fee was waived. I was grateful to save the money but also to be reminded of how fortunate I am, and aware of how many are not. I hope this feeling stays…

Our Christmas Joy

Emily, Tom, Noel, and Astrid

At times I find myself filled with childlike excitement when I think of this holiday season. Not only am I anxiously awaiting my sons and extended family to come home, and celebrating with friends, but it’s  knowing that Astrid and Noel will be arriving from Honduras in 10 days.

Nine years ago we met four year old Noel, who was in need of life saving heart surgery. Through the generosity of the Ray Tye Medical Aid Foundation and the skilled physicians at Tufts Medical Center, Noel’s surgery was a success. The next year, we were introduced to two year old Astrid, a toddler in need of spinal and foot surgery. These surgeries were successful, as well, and provided free of charge by Shriners Hospital.

Over the years, these two children have truly become part of our family and been embraced and loved by our friends. We’ve had the opportunity to share the ups and downs of life beside them, beginning with serious operations and recoveries, continuing with school and every day life, and sharing celebrations and summer vacations. They started as patients, but it has grown so much deeper and impacted our lives more than we could have ever imagined. Our lives are so much richer with them in it, and they certainly are two of our greatest “gifts”, which will last a lifetime.

Thankful for our donors

Fritz & Gigi

Once again, Fritz & Gigi (The Children’s Shop in Concord, MA) has generously donated clothing for the folks in Honduras and our patients being treated locally. Fritz & Gigi have been faithful supporters of Esperanza for the past several years. Yesterday, when I was picking up their donations, I relayed this story about the impact of their previous gifts.

A couple of years ago, I received a call from the shop that they had clothing to pass along to children in need. Among their donations was a winter snowsuit for an infant. Within 15-20 minutes of me receiving their donations, I was introduced to a baby boy who was in need. Coincidence? I don’t think so…

This has happened to me too many times. Throughout the year we receive clothing, medical equipment, school supplies and more. There have been multiple occasions when we have a request for an item just as we have been given the same thing. Call it what you will, but it gives me faith knowing there is much goodwill that goes around and we are thankful to all who give so willingly.

A mother’s love…there’s nothing stronger.

Jahon and Paola

This past Monday Paola Martinez tearfully said goodbye to her seven year old son, Johan, at the airport in Tegucigalpa, Honduras. Lori Dunn, an airline ambassador for American Airlines was transporting Johan to Boston for continued medical treatment at Shriners Hospital. Six years ago Paola had accompanied Johan, who was born with a lymphatic malformation in his arm and chest and received two operations during their five month stay. Paola and her husband, Eduin, now have a one month old baby girl and would remain in Honduras.

I cannot begin to fathom what a mother goes through emotionally when she sends her child off with a stranger, to another country, to face intricate surgeries. Sadness, fear, emptiness to name a few emotions. But it is Paola’s endless love for Johan and her selflessness that enables her to let him go, and trust in others.

Despite being thousands of miles apart, Johan is never far from his mother’s thoughts. Paola has been faithfully calling her son to see how he is adjusting to living without her. I assure her that he is a happy, kind and polite little boy who has been having fun riding his scooter, going to the playground and trying new foods. I don’t share that the first few nights at our home were hard for Johan. In Honduras, he lives in a one room structure where the whole family sleeps in the same bed. Here he is given his own bed, in his own room, on his own floor of the house. It may be fun during the day, but it’s scary at night and the only time Johan expresses missing his mom. It’s heartbreaking watching this little boy trying to be strong as the big tears trickle down his face. I may be his fun playmate during the day, but nobody can replace Mommy at night.

Right now I am writing this in the waiting room while Johan is in the OR for approximately five hours. Just before he went in, his mom called to send her love, and comfort him. We’re three and a half hours in, and it’s a long wait…but not as long as it is for his mom. She is at home with her extended family, praying for the doctor and his team, and for a safe and successful surgery for Johan. I’m anxiously awaiting to hear Johan is in the recovery room and be able to call Paola with the news!

Lizzie’s Legacy Continues

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Lizzie Morrison’s commitment to making a difference in the lives of others continues with her recent book drive for Esperanza-Hope for the Children, Inc. This has become an annual event for Lizzie who reaches out to her neighborhood community of Concord as well as her school community (Lawrence Academy) in Groton. This year over $1,200 was raised for Esperanza, and  half of the books sold were donated by Lizzie. Proceeds from the sale will be used for community projects in the village of Flores, Honduras.

Esperanza is grateful for all the individuals and organizations who have supported us throughout the years. However, we would like to acknowledge particular people who have dedicated years of involvement  such as Lizzie Morrison. Lizzie began volunteering with Esperanza when she was an elementary school student. She began visiting patients in the hospital and became an active participant as a member of a “host family” for children in need for temporary housing, prior to their return to their native country.

Lizzie has continued her active involvement by mentoring Honduran children who are here for medical treatment, raising awareness of this country which is the 2nd poorest in the Western Hemisphere and inspiring her peers to follow her leadership of making a difference in the world.

We are thankful for all the lives Lizzie has touched and will continue to impact in the years to come.

 

 

“Ask and you shall receive.”

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Esperanza-Hope for the Children, Inc. would like to offer a huge “shout out” to the folks at Samaritan’s Feet. Yesterday we received several boxes (containing 288 pairs of children’s “croc type” shoes and 91 pairs of adult flip flops). This generous donation of footwear will have a significant impact in the community of Flores, Honduras and beyond. The rubber made shoes are durable and will hold up well in the rainy, muddy weather.

We are avid proponents of prevention and these shoes will provide protection from many illnesses and injuries. Children are required to wear black shoes to school and we’re hoping these will fill the requirement. Unfortunately, many school age children do not attend classes because they cannot afford shoes or other pieces of their uniform. It is a common sight to see children running barefoot down littered dirt roads often resulting in bloodied open wounds…we know these gifts will be treasured.

We’re thankful of our new relationship with Samaritan’s Feet and the wonderful work they are doing throughout the world. Next month Rev. Lauren Lorincz from Pilgrim Congregational Church UCC in Lexington, MA will be joining us on our trip and we look forward to handing out shoes with her.